Workshop Guide: Patient Involvement in Clinical Practice Guidelines Instructions for Facilitators Funded by the European Union. Views and Opinions Expressed Are However Those of the Author(s) Only and Do Not Necessarily Reflect Those of the European Union or Hadea. Neither the European Union Nor the Granting Authority Can Be Held Responsible for Them

Involve the PAG in the development of the guideline scope, shaping the clinical questions (PICO) and rating the importance of outcomes from patient perspective. [...] Involve in the identification of gaps in evidence and gathering unpublished non-experimental data. [...] - Highlight areas where patient preferences and patient choice may need to be acknowledged in the guideline. [...] Consult on the final draft guideline will ensure that patients will support the implementation of the guideline. Involve in the peer review panel to review the guideline before publication. [...] STAGE 4 IMPLEMENT Communication & Dissemination Involve in the communication and launch events of the final guideline. [...] Implementation Consult patient groups locally on the implementation of the guidelines. Involve in the implementation team to ensure patients are receiving care that is recommended. [...] Please refer to the information below for further information on patient engagement in each of the stages. 10’ 10’ 20’ First round starts. The facilitator will inform the participants that they will have 20’ for this first round. [...] Print copies of the information for participants for each participant and distribute them accordingly. [...] STAGE 4 IMPLEMENT • What role can play patient representatives in the dissemination of the guidelines? • How the engagement with patient representatives may help to enhance the implementation plan? [...] Population, Intervention, Comparison and Outcome is a framework to help clearly determine, define and structure the different aspects of what will be investigated.