End the care crisis: stories from people affected by ms in England

Diverse experiences demonstrate the transformative impact social care can have when delivered well. Good social care enables people with MS to live full independent lives, to work, stay healthy, and it takes the pressure off the NHS. This report is based on eight interviews, and captures the experiences of people with MS and their carers aged 30-72 in England. Participants were identified and recruited by the MS Society, and interviews were conducted by The Focus Group. The interviews cover individuals’ and carers’ care and support needs, experience of services over time and the impact of receiving or not receiving social care on their lives. Individuals’ stories are presented in this report in their own words. This report builds on the findings of the MS Society survey, My MS My Needs 2, in 2016 the largest survey of people with MS to date.