EURORDIS

European Organisation for Rare Diseases

Publications

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UNDERSØKELSESRESULTATER Meningen til personer som lever med en sjelden sykdom på nyfødtscreening

UNDERSØKELSESRESULTATER Meningen til personer som lever med en sjelden...

2024

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With a Rare Disease

With a Rare Disease

2024

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APTAUJAS REZULTĀTI Ar retu slimību dzīvojošo cilvēku viedoklis par jaundzimušo skrīningu

APTAUJAS REZULTĀTI Ar retu slimību dzīvojošo cilvēku viedoklis par...

2024

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Odiseea diagnosticului a persoanelor care trăiesc cu o boală rară

Odiseea diagnosticului a persoanelor care trăiesc cu o boală rară

2024

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Eurordis Responds to European Parliament Adoption of Legislation on Health Data Space

Eurordis Responds to European Parliament Adoption of Legislation on Health Data Space

2024

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Bij de geboorte screenen op zeldzame ziekten!

Bij de geboorte screenen op zeldzame ziekten!

2024

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Rejsen til diagnose for mennesker, der lever med en sjælden sygdom

Rejsen til diagnose for mennesker, der lever med en sjælden sygdom

2024

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Workshop Guide: Patient Involvement in Clinical Practice Guidelines Instructions for Facilitators Funded by the European Union. Views and Opinions Expressed Are However Those of the Author(s) Only and Do Not Necessarily Reflect Those of the European Union or Hadea. Neither the European Union Nor the Granting Authority Can Be Held Responsible for Them

Workshop Guide: Patient Involvement in Clinical Practice Guidelines...

2024

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Il percorso diagnostico delle

Il percorso diagnostico delle

2024

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Eurordis: Compromise Amendments on Pharmaceutical Reforms Are a ‘Meaningful Step’ Forward

Eurordis: Compromise Amendments on Pharmaceutical Reforms Are a ‘Meaningful...

2024

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